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Blood Cancer Patient Forum

Saturday 9 September 2017, Heritage Hotel, Auckland 


Leukaemia & Blood Cancer New Zealand (LBC) are pleased to be hosting this year’s Blood Cancer Patient Forum at Heritage Auckland. This will be a unique opportunity for blood cancer patients and their family/whānau to hear international and local speakers discussing a wide range of topics relevant to New Zealanders living with a blood cancer or blood condition. Throughout the day there will be a number of sessions ranging from disease biology and treatment updates, to specialist information to help manage the practical and emotional impacts, as well as to support you to live well with or beyond a blood cancer.

Programme Highlights

Pre-forum Workshop

‘Thriving through Survivorship’
Friday 8 September, 3.00pm to 5.00pm

Welcome Reception 

Drinks and nibbles 
Friday 8 September, 5.00pm to 7.00pm

Blood Cancer Patient Forum 

Saturday 9 September, 8.45am to 4.30pm


Speakers

Dr Bart Baker
Haematologist

Topics:

Keynote Speech: 'An introduction to blood cancers and their treatment'

'When doing nothing is best: coping with watch and wait'

Biography:

Bart Baker began his haematology career as a registrar in the Haematology Department at Christchurch Hospital before completing his training as a Research Fellow in the Paterson Institute for Cancer Research at the Christie Hospital in Manchester. He was appointed to his current position as a General Haematologist for the Regional Cancer Treatment Service based at Palmerston North Hospital in 1992. Bart has a particular interest in malignant haematology.

Dr Peter Browett
Professor of Pathology and Head of the Department of Molecular Medicine and Pathology at the University of Auckland School of Medicine, Consultant Haematologist at Auckland City Hospital, and Consultant Haematologist at Diagnostic Medlab

Topic:

'Should I sign up for a clinical trial?'

Biography:

Peter has a clinical interest in the management of patients with haematological malignancies, including blood cell and bone marrow transplantation. In the laboratory, he has an interest in cell marker and molecular studies in the diagnosis and monitoring of patients with leukaemia, lymphoma and inherited blood disorders.

Henry Chan 
Haematologist 

Topic:

'Secondary cancers: what you need to know'

Biography:

Henry graduated from the University of Auckland in 2007 and subsequently began his haematology training in 2011. Following completion of his training, he went to Toronto and completed a clinical fellowship in myeloma and lymphoma at the Princess Margaret Cancer Centre. He is currently working as a clinical and laboratory haematologist at North Shore Hospital in Auckland, and his interest includes myeloma, lymphoma, clinical research, biostatistics and teaching.

Dr Alwyn D’Souza  
Haematologist 

Topic:

'MDS/MPN'

Biography:

Bio: Dr Alwyn D’Souza is a consultant haematologist at Capital & Coast District Health Board. He graduated from Otago School of medicine in 1993. He did the majority of his post-graduate training in Wellington, before completing his training in Melbourne at the Royal Melbourne hospital and Peter MacCallum cancer centre. He has worked at Wellington hospital as a consultant since 2006. His special areas of interest are haematopoietic stem cell transplantation (“bone marrow transplantation”), and lymphomas. He also has an interest in medical education and is the current chair of the NZ Joint training committee in haematology.

Sue Dykes
Psychologist

Topic:

'Practical Mindfulness sessions'

Biography:

Sue is a Clinical Psychologist and the Director of Mindfulness Auckland, which has provided 8 week Mindfulness-based courses for Stress reduction (MBSR)since 2003, and Cognitive Therapy for depression and anxiety (MBCT) starting in 2016. These courses , developed by Jon Kabat-Zinn and others, have been at the cutting edge of research-based mindfulness approaches in western health practice for nearly 40 years. Sue has been practising and teaching mindfulness in a therapeutic context since the early 2000’s. From 2013-2016 Sue taught the popular MBSR-based courses for LBCF clients and family/ caregivers throughout the country with Rebecca Weeks. People who participated in these courses discovered various benefits of mindfulness practice, including better sleep, greater body awareness, decreased anxiety/agitation, and better ways of accessing stillness and calm in navigating whatever was happening in their lives. A major emphasis of mindfulness is on learning to be kind and non-judging towards ourselves, which in turn has a calming effect, and encourages us to take the time to care for ourselves in whatever ways are best. Sue values bringing people together in groups, and harnessing the powerful support and learning we can experience with others who truly understand what we are going through.

Tracey Hancock
NLP Coach & Mentor

Topic:

'The power of language' - we use words every day to express how we feel, what we’re doing and what we’re experiencing. Those words have become so familiar that we don’t question what they mean or how they might affect us, we simply use them. But what we think and say matters, and it matters a lot.The words and phrases that are part of our everyday vocabulary have the power to influence everything about our life including our health. Drawing on her own experience with Hodgkin lymphoma and background as a NLP trained life coach, Tracey Hancock will share insights about the power of words and how to use them to live well.

Biography:

Tracey Hancock is a NLP coach and mentor passionately committed to helping people live well. Drawing on her own experiences, including being diagnosed with Hodgkin lymphoma in 2015, and the lessons she's learnt trying to be and do what she should thought was expected of her, Tracey guides people to reconnect with their true self and to live their real life. “I believe that when we put ourselves and our health at the heart of everything we do in life and business, we can achieve real success.”

Dr Shaun Holt
Adjunct Professor at Victoria University of Wellington and Scientific Director and founder of HoneyLab 

Topic:

'Complementary therapies for cancer - what works, what doesn't and how to tell the difference'

Biography:

Dr. Shaun Holt is an Adjunct Professor at Victoria University of Wellington, has started two clinical trials organizations and formed Research Review, a company that produce reviews of medical research. Shaun holds Pharmacy and Medicine degrees, has been the Principal Investigator in over 50 clinical trials and has over 200 publications in the medical literature. He is the Scientific Director and a founder of HoneyLab and an advisor to several pharmaceutical companies. Shaun has been a regular contributor on TV1's Breakfast programme and national radio shows and is the author of 8 books including the bestseller "Natural Remedies That Really Work". He was a finalist in the 2015 New Zealander of the Year Awards in the Innovator category.

Juliet Ireland
Health Psychologist

Topics:

'Caring: Riding the highs and lows'

'Stress - friend and foe'

Biography:

Juliet is a Health Psychologist with vast experience working with individuals, groups and health professionals. She has worked for the past 10 years with people with cancer and their whanau and currently is the National Clinical Lead for the Cancer Psychological and Social Support Initiative, a Ministry of Health funded Initiative to improve access to psychological and social support across New Zealand. Juliet has an interest in people’s responses to a diagnosis and treatment of cancer, both the experience of the person with cancer but also the experience of whanau/carers. She is also interested in how these experiences can influence outcomes. Juliet is an Honorary Clinical Lecturer in the Department of Psychological Medicine at the University of Auckland where she teaches and supports training health psychologists and she also has a small private practice.

Lou James 
Physiotherapist 

Topic:

'Unveiling the hidden wonder drug - exercise'

Biography:

Lou James has dedicated the last 14 years to helping improve the lives of people affected by cancer. Lou, an experienced physiotherapist, is responsible for the introduction of the PINC Program: an individualised rehabilitation and exercise program, which focuses on the physical and mental wellbeing of females affected by cancer. Its male equivalent – The STEEL Program– has been subsequently introduced. The programmes are now available in 6 counties and have supported thousands of people. She has also developed Next Steps, which is a group exercise programme for after cancer treatments have finished and PaddleOn, a group stand up paddling rehabilitation programme. In 2006, Lou founded the PINC & STEEL cancer rehabilitation Trust to help make rehabilitation more accessible and affordable for all New Zealander as there is no health system or ACC funding for cancer rehabilitation in New Zealand. Lou still serves as a Trustee. In 2008, Lou started training other physiotherapists across Australasia in cancer rehabilitation. Pinc and Steel is now the largest cancer rehabilitation program in Australasia and is extending into other counties including the UK, US and Canada. Lou has been recognised for her pioneering work in this field, most recently being appointed a Member of the New Zealand Order of Merit in the Queens New Years Honours List for services to cancer. 

Tracy King
Clinical Research Fellow, Cancer Nursing Research Unit (CNRU), Myeloma Clinical Nurse Consultant (CNC)

Topics:

'Myeloma 101: Helping to make sense of the myeloma marathon'

'Closing Speech: Living well with a blood cancer - learning to manage, building resilience'

Biography:

Tracy King is a registered nurse with over 20 years experience in the field of malignant haematology and blood and marrow transplantation. She is an active member of a range of national and international professional working groups including those of the Cancer Institute NSW; Leukaemia Foundation Medical and Scientific Advisory Committee (MSAC); steering committee Myeloma and Related Disease Registry (MRDR); Director of Sydney Blood Cancer Research; Chair of the HSANZ Myeloma Special Practice Network and the Immediate Past President (founding member) of the Haematology Society of Australia and New Zealand (HSANZ) Nurses Group. Most recently Tracy has lead the nurse’s program development and delivery during the International Myeloma Workshop (IMW) and is an international affiliate member of the International Myeloma Foundation Nurse Leadership Board. Trained in the UK, she gained her clinical experience at the Hammersmith Hospital BMT unit. As a member of the board of directors of the International Myeloma Foundation (IMF) UK, she further specialised in the care and support of those affected by multiple myeloma, going on to set up a myeloma awareness and education program for nurses within the UK. After moving to Australia in 2004, Tracy continued to follow her interest in the care of those with myeloma by taking up positions of support services manager of the Myeloma Foundation of Australia and Myeloma Nurse Consultant RPAH Sydney, a position she set up and organised funding for herself. During this time, she also completed a Masters in Nursing Leadership and was invited to become a Clinical Associate at University of Sydney (NSW) Cancer Nursing Research Unit (CNRU). Tracy successfully completed a Clinical Training Fellowship from the Cancer Institute NSW and continues to lead a program of research in supportive care as a Clinical Research Fellow Most recently Tracy has enrolled on her PhD at Sydney University. Her area of research will be in the experience of those affected by myeloma taking high dose steroids. 

Dr Sean MacPherson  
Haematologist

Topic:

'Blood Test Results'

Biography:

Dr Sean A. Macpherson is a haematologist and senior clinical lecturer with Canterbury District Health Board and the University of Otago, Christchurch, New Zealand. He graduated with honours from Glasgow University in 1998. Dr MacPherson was a haematology trainee in the South West of England and a consultant in Gloucester for 3 years before moving to Christchurch. He is now part of the UOC Haematology Research Group, currently investigating immunosuppression in chronic lymphocytic leukaemia. Dr MacPherson is enthusiastic about education and employs innovative techniques including song, poetry, drama and even prison visits to get his message across. He received the Christchurch Medical Students Association Award for Best Teacher in 2013, 2014 and 2016.

Naomi McRae
Community Engagement Projects - PwC Foundation

Topic:

'Positioning your health history in the market and job search tips'

Biography:

Naomi has an extensive background in Human Resources working as an HR Manager for large corporations in London and NZ. She currently works for PwC, one of our core charity partners. After a battle with advanced Hodgkin Lymphoma 7 years ago, Naomi changed focus to project work, now working for the PwC Foundation running community engagement projects. Naomi is a mum to 2 miracle boys born post treatment and lives on the North shore with her husband Sam and boys Lauchlan and Owen.

Ian Scott  
General Manager of Randstad Technologies

Topic:

'Positioning your health history in the market and job search tips'

Biography:

Ian is lucky enough to be able to combine his love of recruitment, leadership, and technology within his role as General Manager of Randstad Technologies. He joined the recruitment industry direct from University and after enjoying successful roles in the industrial, commercial, and engineering sectors, he found his passion for technology recruitment in 2008. Ian is inspired to support IT companies and teams in high growth mode. He is truly curious and enthusiastic about how technology is shaping the world around us. At the heart of that technology change is people. Earlier in his career, as Programme Manager for a non-for-profit organisation called OMEGA, Ian helped develop a mentoring programme for new migrants in Auckland to better connect them to the labour market. He is looking to bring that knowledge and experience to serve those who have survived a blood cancer, who are thriving and who now wish to return to the workforce. Ian was diagnosed with Chronic Myeloid Leukaemia in December 2016 so has some personal appreciation for the issues that people face in retaining their current roles, retraining into new sectors or role types and in returning to work.  

Julija Sipavicius
Haematology/Bone Marrow Transplant Nurse Practitioner, Royal North Shore Hospital, Sydney

Topic:

'Post transplant care - monitoring guidelines and practical tips'

Biography:

Julija is a registered nurse with over 20 years experience in the field of haematology and blood and marrow transplant (BMT) nursing. Having trained in Australia Julija spent 8 years working at the Hammersmith Hospital in London UK where she further established her interest in BMT and undertook a range of post graduate advanced haematology nursing courses. On returning to Australia Julija took a short break from the clinical area, working with the BMT Network of NSW coordinating an acuity research project then as Haematology/BMT content author for the Cancer Institute of NSW. Julija returned to the clinical area as a senior nurse, completing a Masters Degree in Nursing Leadership and then moving to the Royal Melbourne Hospital Clinical Haematology and BMT services as the BMT coordinator, and more recently as a BMT Nurse Practitioner. During this time she successfully completed a second Masters degree in Nurse Practitioner. She is a founding member of the Haematology Society of Australia and New Zealand (HSANZ) Nurses Group, past secretary and co-editor for the HSANZ NG newsletter, and she is an affiliate lecturer at the University of Sydney. Julija currently works as the Haematology/BMT Nurse Practitioner at the Royal North Shore Hospital in Sydney. Again her core clinical work is in BMT with a focus on post-transplant care and long term follow-up, in addition to managing patients with Multiple Myeloma.

Associate Professor Clare Wall  
Head of the Discipline of Nutrition and Dietetics at The University of Auckland, Medical School and Director of the MHSc Nutrition and Dietetic Programme

Topic:

'Diet and Cancer – how to spot a hoax'

Biography:

Associate Professor Clare Wall is the Head of the Discipline of Nutrition and Dietetics at The University of Auckland, Medical School and Director of the MHSc Nutrition and Dietetic Programme. After qualifying as a dietitian in the UK in 1984, she specialised in paediatric dietetics, working in both the UK and Australia. She has had many years of practical experience assisting parents, children and adolescents with nutrition advice and support. Clare is an active member of the nutrition community in New Zealand and serves on a number of national review panels and committees.

Heidi Watson  
National Clinical Leader – AYA Cancer Network Aotearoa

Topic:

'Young Adults Workshop'

Biography:

Heidi is the national clinical leader of the AYA Cancer Network Aotearoa. She is a passionate and experienced health professional with a strong clinical, education and leadership background. Her enthusiasm for, and commitment to youth health has focused on improving the outcomes of youth with cancer and chronic health conditions. Previously, Heidi held the position of AYA Cancer Nurse Specialist for Auckland District Health Board. Alongside her AYA clinical leadership role she holds a youth health academic position at the University of Auckland.

Erica Weerekoon  
Counsellor

Topic:

'Building resilience into your day, your week, your life'

Biography:

Erica is a qualified counsellor working in the areas of change, loss and grief associated with ill health & bereavement. She is a member of NZAC (the NZ Assoc of Counsellors); RNRM; BA(Nsing); MHPEd; PGCert Prof Sup; MNZAC. She is committed to supporting others through times of great stress in their lives, and has worked all her career in the areas if ill health, hospice and palliative care – firstly as a registered nurse (trained at Waikato Hospital), later in palliative care education (at St Vincent’s Hospice, Sydney and with the NSW Cancer Society) and for the last 15 years as a counsellor (in Sri Lanka & Hamilton). Erica grew up on a farm in Te Pahu in the Waikato. She studied Nursing, Anthropology and Counselling at Massey University, moved to Sydney mid- career and for more study, then went off with her husband to Sri Lanka to be with family. During her 12 years in Sri Lanka Erica worked voluntarily as educator and counsellor with the Sri Lanka Cancer Society. She also founded a NGO Cancer Care Service, which provides free counselling and psychosocial care for people and their families living with mouth cancer. Erica continues to work with this organisation, going back to Sri Lanka at least twice a year. Two areas of special interest for Erica in her life and her work of supporting others is exploring and encouraging self-care and the interconnectedness we have with each other and with nature. To nourish her mind, body and spirit, Erica enjoys down to earth mindfulness practice, restoring their gully, and relaxing with family & friends.

Accommodation

Heritage Auckland 

35 Hobson Street, Auckland City
Superior Room - $230 incl GST per night
Email – res@heritagehotels.co.nz
Ph: 0800 368 888
Quote – ‘Blood Cancer Patient Forum’ to access rates

Rydges Auckland  

59 Federal Street, Auckland City
Deluxe Cityview Rooms - $172 incl GST per night
Email - reservations_rydgesauckland@evt.com
Ph: 09 375 5900
Quote – ‘Blood Cancer Patient Forum’ to access rates

SKYCITY Auckland

Federal Street, Auckland City
Premium Rooms - $279 incl GST per night
Email - Amar.Jain@skycity.co.nz
Ph: 09 363 6263
Quote – ‘Blood Cancer Patient Forum’ to access rates

Access and Parking

Parking 

Free parking is available for all Blood Cancer Patient Forum attendees at the Farmers Wilson Parking building located directly across the road from The Heritage on the corner of Hobson and Wyndham Streets. To redeem the free parking offer, simply enter the carpark and pull a ticket at the entry barrier. LBC will then provide you with a single exit ticket at registration which will allow you to exit the carpark. PLEASE NOTE: This parking offer is only available at Wilson Parking, 21-23 Hobson Street.

Disability Access/Step free access 

There is step free access to the conference room via Wyndham Street. Please note: There is no direct step free access to the conference via the main entrance on Hobson Street

Contact

Address

PO Box 99182
Newmarket
Auckland 1149

Contacts 

0800 15 10 15
supportservices@leukaemia.org.nz